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PAN and Others Request Action from Congress

The Parkinson’s Action Network sent this to us for our blog:
The Parkinson’s Action Network and RetireSafe, along with 58 other organizations sent a letter to Congress urging them to take action on the SBIR Reauthorization Act this Congressional session. The Parkinson’s Action Network recognizes the unique needs of small biotechnology companies and that shrinking the [...]

Chat with John Risner, President of the Children’s Tumor Foundation

Hopes and Cures spokes to John Risner, President of The Children’s Tumor Foundation about the group’s work, in particular about funding for research.  CTF is a non-profit 501(c) (3) medical foundation, dedicated to improving the health and well being of individuals and families affected by the neurofibromatosis (NF).
 
ABOUT NF
Neurofibromatosis (NF) is the term for [...]

Alzheimer’s Drug Discovery Foundation

 

 
Alzheimer’s Drug Discovery Foundation
A new way to look at funding
The Alzheimer’s Drug Discovery Foundation (ADDF) raises money and awards grants to academic and biotechnology industry scientists who are conducting drug discovery research for Alzheimer’s Disease, related dementias and cognitive aging.
The way research is funded is evolving and by employing a venture capital model, [...]

Cystic Fibrosis Foundation Lauds Congress

The Cystic Fibrosis Foundation today lauded the U.S. House of Representatives for passing legislation to reauthorize the Small Business Innovation Research (SBIR) program.
 
 

In response to testimony from Robert J. Beall, Ph.D., president and CEO of the Foundation, the legislation includes a provision requiring that special attention be given to research for rare diseases, such as [...]

House renews SBIR bill, now onto the Senate!

Yesterday, the House voted overwhelmingly (368-43), to reauthorize the Small Business Innovation Research (SBIR) program.  This bill will allow more biotechnology companies to compete for research funding.
This act will increase access to early-stage funding for treatments and cures for debilitating diseases.  Congress has recognized the capital-intensive needs of emerging biotechnology companies, whose development of a [...]

Conversation with the American Autoimmune Related Disease Association

We chatted with Virginia Ladd, President and Executive Director of the American Autoimmune Related Disease Association.
What is the scope of your work?
There are over 100 types of autoimmune related diseases, including lupus, type I diabetes, scleroderma, celiac, multiple sclerosis, Crohn’s disease, autoimmune hepatitis, rheumatoid arthritis, Graves’ disease, and Sjogren’s syndrome. The NIH estimates that 23.5 [...]

Conversation with the Cystic Fibrosis Foundation

 
The Cystic Fibrosis Foundation is the leading organization in the United States devoted to curing and controlling cystic fibrosis. We spoke with Mary Dwight about her organization and the important work they do.
 Can you tell us a bit about CFF’s purpose?  The Cystic Fibrosis Foundation is the leader in developing drugs to treat and [...]